Description

Genetically Handicapped Persons Program

The Genetically Handicapped Persons Program (GHPP) is a health care program for adults with certain genetic diseases. The GHPP helps people who are on GHPP with their health care needs. The GHPP works with doctors, nurses, pharmacists, and other members of the health care team in providing many types of health services.

NOTE: When you submit the GHPP application, it is very important that you include your prior year’s Federal Tax Form 1040. If you are a dependent on another person’s tax return, that return must be submitted. If you do not submit a complete application, GHPP staff will not be able to authorize GHPP services that are beyond your eligibility period.

IMPORTANT MESSAGE – NEW FAX NUMBER: 916-440-5318

Know the Benefits

The GHPP provides complete services to its clients. Unlike other programs, the GHPP covers services even it is not related for the treatment of the GHPP eligible medical condition. The approval of these services is subject for individual review based on medical need.

GHPP services include the following:

 

• Provides coordinated care to clients with specific genetic conditions
• Multi-disciplinary and multi-specialty teams which consists of doctors, nurses, social workers, and other health team members
• Provides family centered planning
• Facilitates timely and appropriate care

The GHPP SCCs are located throughout California and usually connected with tertiary level medical centers. Each SCC must comply with the GHPP program standards to become an approved provider.

The  GHPP Special Care Centers consist of:

Hospital Stay

An acute hospital stay is a benefit of the GHPP. Continued authorization of hospital stay is subject for review. However, the following admission will not be covered by the GHPP:

• Sub acute facility admission
• Skilled nursing home admission
• Intermediate care facility admission

 

Outpatient medical care services consist of:

• Primary care physicians (PCPs)
• Specialty physicians such as cardiologists, endocrinologists, orthopedists
• Infusion centers
• Transfusion centers, such as for blood transfusions
• Diagnostic Centers, such as X-ray, MRI, etc

These services must be coordinated with the client’s special care center. With the exception of the PCP, all other services must have a referral submitted by the Special Care Center. The provider of the outpatient care must have a  Medi-Cal provider ID number.

Pharmaceutical benefits include the following:

• Medications prescribed by your doctor (Oral, topical, Subcutaneous, etc)

• Home infusion therapy, such as intravenous antibiotics

Certain medications are not covered by the GHPP such as:

• Certain over the counter medications such as multivitamins

• Herbal Supplements

• Medications not approved by the Food and Drug Administration

• Medications that are not included in the Medi-Cal formulary

• Some of the medications if you are enrolled with Medicare Part D

If you are enrolled with Medicare Part D, you lose your drug coverage through the GHPP.  Medicare Part D Frequently Asked Questions

 

Surgeries

Surgeries include:

• In-patient surgeries, such as hip repair

• Out-patient surgeries, such as cyst removal

• Organ transplants, such as a lung transplant

Approval for surgery will be reviewed individually for medical necessity. The GHPP may not cover a surgery if there is no documented medical need.

 

Approval of nutrition products is based on criteria of which all must be met first before these products are authorized.

Nutrition products include:

• Replacement formulas/products, such as Phenex-2, Phenyl Free-1

• Elemental formulas, such as Peptamen Jr

• Calorie dense products, such as Ensure, Boost plus, Two Cal HN

• Nutrition additives, such as Polycose, MCT oils, Duocal 

•  Medical foods, such as low protein foods

Metabolic formula and medical foods are only a benefit for clients with a metabolic disorder.

GHPP benefits includes the rental, repair, or purchase of durable medical equipments. Example of DME’s include:

• Home oxygen delivery, such as oxygen concentrator, portable tanks

• Medical DME, such as portable commode, feeding pumps, Intrapulmonary Percussive Ventilator machines

• Rehab DME, such as wheelchairs, scooters

• Orthotics such as Ankle Foot Orthosis

Each DME has different criteria for approval.  The provider of the DME must have a Medi-Cal provider ID number.

Other services that are covered by the GHPP are:

• Home health services, such as skilled nursing visits

• Therapy services, such as Physical Therapy, Occupational Therapy, and Speech Therapy

• Mental health services, such as psychotherapy counseling

• Medical supplies, such as insulin syringes, diapers, etc.

These services also have criteria to be followed for approval.  The provider of these services must have a Medi-Cal provider ID number.

Contact the Genetically Handicapped Persons Program Office

You may directly contact the Genetically Handicapped Persons Program (GHPP) Office for assistance.

Phone:

For general questions about GHPP, applications or renewals, please call the Integrated Systems of Care Division (ISCD) at 916-552-9105 and make the following selections:

• First, select Option 2 for GHPP
• Next, select Option 2 for Eligibility

Mail:

Genetically Handicapped Persons Program
MS 8100, P.O. Box 997413
Sacramento, CA 95899-7413

Fax:

• Service Authorization Requests (SARs): 916-440-5318
• Applications / Renewals: 916-440-5762

 Email:

• Questions about eligibility: ghppeligibility@dhcs.ca.gov
• Questions about SAR status: faxghpp@dhcs.ca.gov

Overview

The GHPP Special Care Centers are a system that:

• Provides coordinated care to clients with specific genetic conditions
• Multi-disciplinary and multi-specialty teams which consists of doctors, nurses, social workers, and other health team members
• Provides family centered planning
• Facilitates timely and appropriate care

The GHPP SCCs are located throughout California and usually connected with tertiary level medical centers. Each SCC must comply with the GHPP program standards to become an approved provider.

List of Centers

The  GHPP Special Care Centers consist of:

Cystic Fibrosis and Pulmonary Disease Centers

 

Facility Name	City	Center Number
Arrowhead Regional Medical Center	Colton	7.11.09
California Pacific Medical Center	San Francisco	7.11.18
Cedars-Sinai Medical Center	Los Angeles	7.11.08
Children’s Hospital and Health Center of San Diego	San Diego	7.11.16
Children’s Hospital of Central California	Madera	7.11.02
Children’s Hospital of Los Angeles	Los Angeles	7.11.10
Children’s Hospital of Los Angeles	Los Angeles	7.11.25
Children’s Hospital of Oakland	Oakland	7.11.03
Children’s Hospital of Orange County	Orange	7.11.13
Kaiser Foundation Hospital	Oakland	7.11.29
Kaiser Foundation Hospital	Roseville	7.11.30
Kaiser Permanente Hospital	Santa Clara	7.11.31
Loma Linda University Medical Center	Loma Linda	7.11.17
Lucile Salter Packard Children’s Hospital at Stanford	Palo Alto	7.11.07
Miller Children’s at Long Beach Memorial Medical Center	Long Beach	7.11.15
Santa Clara Valley Medical Center	San Jose	7.11.26
Sutter Memorial Hospital	Sacramento	7.11.19
UC Davis Medical Center	Sacramento	7.11.05
UC Los Angeles Medical Center	Los Angeles	7.11.28
UC San Francisco Medical Center	San Francisco	7.11.04
USC University Hospital	Los Angeles	7.11.27

Hemophilia Centers

 

Facility Name	City	Center Number
Alta Bates Hospital	Berkeley	7.15.17
Children’s Hospital and Health Center of San Diego	San Diego	7.15.12
Children’s Hospital of Central California	Madera	7.15.16
Children’s Hospital of Los Angeles	Los Angeles	7.15.09
Children’s Hospital of Oakland	Oakland	7.15.03
Children’s Hospital of Orange County	Orange	7.15.20
City of Hope Medical Center	Duarte	7.15.21
Loma Linda University Medical Center	Loma Linda	7.15.11
Long Beach Memorial Medical Center	Long Beach	7.15.22
Lucile Salter Packard Children’s Hospital at Stanford	Palo Alto	7.15.04
Orthopaedic Hospital	Los Angeles	7.15.13
San Bernardino County Medical Center	San Bernardino	7.15.24
UC Davis Medical Center	Sacramento	7.15.10
UC San Diego Medical Center	San Diego	7.15.23
UC San Francisco Medical Center	San Francisco	7.15.02

Hematology/Oncology Centers

 

Facility Name	City	Center Number
California Pacific Medical Center	San Francisco	7.16.27
Cedars-Sinai Medical Center	Los Angeles	7.16.04
Children’s Hospital and Health Center of San Diego	San Diego	7.16.11
Children’s Hospital of Central California	Madera	7.16.19
Children’s Hospital of Los Angeles​	Los Angeles	7.16.12
Children’s Hospital of Los Angeles (Bone and Extremity Tumor Program)	Los Angeles	7.16.12a
Children’s Hospital of Los Angeles (Neuro-Oncology Program)	Los Angeles	7.16.12B​
Children’s Hospital of Oakland	Oakland	7.16.02
Children’s Hospital of Orange County	Orange	7.16.13
City of Hope Medical Center	Duarte	7.16.15
Harbor-UCLA Medical Center	Torrance	7.16.24
Kaiser Foundation Hospital	Los Angeles	7.16.17
Kaiser Foundation Hospital	Roseville	7.16.30
Kaiser Permanente Medical Center	Oakland	7.16.25
Kaiser Permanente Medical Center	Santa Clara	7.16.31
Loma Linda University Medical Center	Loma Linda	7.16.08
Lucile Salter Packard Children’s Hospital at Stanford	Palo Alto	7.16.10
Miller Children’s at Long Beach Memorial Medical Center	Long Beach	7.16.07
Orthopaedic Hospital	Los Angeles	7.16.16
San Bernardino County Medical Center	San Bernardino	7.16.28
Santa Barbara Cottage Hospital	Santa Barbara	7.16.32
Sutter Memorial Hospital	Sacramento	7.16.22
UC Davis Medical Center	Sacramento	7.16.06
UC Los Angeles Medical Center	Los Angeles	7.16.09
UC San Francisco Medical Center	San Francisco	7.16.03

 

Metabolic and Endocrine Centers

 

Facility Name	City	Center Number
California Pacific Medical Center (Endocrine Only)	San Francisco	7.09.26b
Cedars-Sinai Medical Center (Metabolic Only)	Los Angeles	7.09.20a
Children’s Hospital and Health Center of San Diego (Metabolic Only)	San Diego	7.09.06a
Children’s Hospital and Health Center of San Diego (Endocrine Only)	San Diego	7.09.06b
Children’s Hospital of Central California (Metabolic Only)	Madera	7.09.08a
Children’s Hospital of Central California (Endocrine Only)	Madera	7.09.08b
Children’s Hospital of Los Angeles (Metabolic Only)	Los Angeles	7.09.03a
Children’s Hospital of Los Angeles (Endocrine Only)	Los Angeles	7.09.03b
Children’s Hospital of Oakland	Oakland	7.09.02
Children’s Hospital of Oakland (Metabolic Center)	Oakland	7.09.31a
Children’s Hospital of Orange County (Endocrine Only)	Orange	7.09.04b
Children’s Hospital of Orange County (Metabolic Only)	Orange	7.09a.2
Harbor-UCLA Medical Center (Metabolic Only)	Torrance	7.09.21a
Harbor-UCLA Medical Center (Endocrine Only)	Torrance	7.09.21b
Kaiser Permanente Medical Center (Metabolic Only)	Oakland	7.09.10a
Kaiser Foundation Hospital, Hayward (Endocrine Only)	San Leandro	7.09.35b
Kaiser Foundation Hospital, Los Angeles (Metabolic Only)	Los Angeles	7.09.25A
Kaiser Foundation Hospital, Oakland (Endocrine Only)	Oakland	7.09.32b
Kaiser Foundation Hospital, Roseville (Endocrine Only)	Roseville	7.09.33b
Kaiser Foundation Hospital, Walnut Creek (Endocrine Only)	Walnut Creek	7.09.34b
​Kaiser Foundation Hospital, Santa Clara (Endocrine Only)	​Santa Clara	​​7.09.36b
Loma Linda University Medical Center (Endocrine Only)	Loma Linda	7.09.07b
Los Angeles County-USC Medical Center (Metabolic Only)	Los Angeles	7.09.05a
Lucile Salter Packard Children’s Hospital at Stanford (Metabolic Only)	Palo Alto	7.09.24a
Lucile Salter Packard Children’s Hospital at Stanford (Endocrine Only)	Palo Alto	7.09.24b
Miller Children’s at Long Beach Memorial Medical Center (Endocrine Only)	Long Beach	7.09.23b
Miller Children’s at Long Beach Memorial Medical Center (Metabolic Only)	Long Beach	7.09.28a
Santa Barbara Cottage Hospital (Endocrine Only)	Santa Barbara	7.09.37b
Santa Clara Valley Medical Center (Endocrine Only)	San Jose	7.09b.2
Sutter Memorial Hospital (Metabolic Only)	Sacramento	7.09.22a
Sutter Memorial Hospital (Endocrine Only)	Sacramento	7.09.22b
UC Davis Medical Center	Sacramento	7.09.11
UC Los Angeles Medical Center (Metabolic Only)	Los Angeles	7.09.12a
UC Los Angeles Medical Center (Endocrine Only)	Los Angeles	7.09.12b
UC San Francisco Medical Center (Metabolic Only)	San Francisco	7.09.14a
UC San Francisco Medical Center (Endocrine Only)	San Francisco	7.09.15b
​Ventura County Medical Center	​Ventura	​7.09.38b

Sickle Cell Disease Centers

 

Facility Name	City	Center Number
Alta Bates Hospital	Berkeley	7.17.14
Cedars-Sinai Medical Center	Los Angeles	7.17.16
Children’s Hospital and Health Center of San Diego	San Diego	7.17.24
Children’s Hospital of Central California	Madera	7.17.23
Children’s Hospital of Los Angeles	Los Angeles	7.17.08
Children’s Hospital of Oakland	Oakland	7.17.06
Children’s Hospital of Orange County	Orange	7.17.19
City of Hope Medical Center	Duarte	7.17.11
Harbor-UCLA Medical Center	Torrance	7.17.18
Highland Hospital	Oakland	7.17.22
Kaiser Foundation Hospital	Roseville	7.17.27
Kaiser Permanente Medical Center	Oakland	7.17.21
Kaiser Permanente Medical Center West Los Angeles	Los Angeles	7.17.17
Loma Linda University Medical Center	Loma Linda	7.17.07
Los Angeles County-USC Medical Center	Los Angeles	7.17.13
Lucile Salter Packard Children’s Hospital at Stanford	Palo Alto	7.17.10
Miller Children’s at Long Beach Memorial Medical Center	Long Beach	7.17.20
Saint Agnes Medical Center	Fresno	7.17.04
San Francisco General Hospital	San Francisco	7.17.05
Sutter Memorial Hospital	Sacramento	7.17.26
UC Davis Medical Center	Sacramento	7.17.02
UC Los Angeles Medical Center	Los Angeles	7.17.09
UC San Francisco Medical Center	San Francisco	7.17.25

Specified Inherited Neurological Diseases Centers

 

Facility Name	City	Center Number
California Pacific Medical Center	San Francisco	7.24.09
Children’s Hospital and Health Center of San Diego	San Diego	7.24.07
UC Davis Medical Center	Sacramento	7.24.10
UC Los Angeles Medical Center	Los Angeles	7.24.05
UC San Francisco Medical Center	San Francisco	7.24.11
UC San Diego Medical Center	San Diego	7.24.03

 

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